Jul
21
2008
Well it is almost the end of July. I was at a craft store over the weekend and they already have Halloween items on the floor and I also picked up a few (4) sewing kits of Christmas items. This past week was not the best and as I am writing this, my father is in ICU at Baylor in Dallas. Hospice will be joining us soon and the belief is that Daddy has only a few weeks left on this earth. We shall see. To my husband Thierry, I would like to wish a happy birthday. Two days later it is my Dad’s birthday and finally two days later it is Scott’s birthday. Scott is my daughters boy-friend and just hit the big 21! Happy Birthday to all my special fella’s..
This week we continue with our autism interview and we will be focusing on how Autism affects the family and finances. A very special Thank you to George Williams for sharing his knowledge on this subject.
Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.
Audio Production by
Jungledad Productions.
Jul
14
2008
Hi and welcome to Monday. It is the middle of July and there is so much going on. We have had a bit of a heat wave up here in Maine, but still only have window units on. It is so much different than living in the Deep South…
Today’s show focuses on Autism. What it is and how it affects families. Currently we are waiting for an appointment to have our son evaluated for autism to see what the best way is to help him. This weeks show and next weeks will help you and answer questions if autism is part of your family too.
Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.
Audio Production by
Jungledad Productions.
Apr
21
2008
Today we not only have a new show available with Amy Arnold, but we also have more menues for your family.
Today on the funny side of life, my 8 year old son managed to get through a lock and into our kitchen to cook. The funny part to the story is that Alex has Down’s and functions at about a 4-5 year old age. His cooking consisted of 18 eggs, leftover chicken, a bottle of Ranch Dressing, Baking Powder and ketchup. I’m not sure what he was going for, but atleast it didn’t take as long to clean up as last time…
Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.
Audio Production by
Jungledad Productions.
Apr
04
2008
Today we have Chicken and Biscuit bake. Simple and easy! you need 1 lb of chicken, 1/2 C sour cream, 1 bag of broccoli, 1 can of either chicken or mushroom soup, a package of biscuits, 1/2 C cheddar cheese, and 1 Tablespoon of seasoning( I used Home Made Gourmet’s roast beef seasoning staple). The costs are chicken $2.93, sour cream .79, broccoli 1.40, soup .69, biscuits 1.10, cheddar cheese .50, seasoning .25. this recipe feeds 10. The total cost is $7.66 which leaves us $410.51
Well it’s Friday and all the kids went to school, thank God. Thierry gave blood at the hospital for the doctors and we then meet with the boys Case Manager to discuss the recent IEP and the plans for the summer. What a day. We even went to Sam’s and got a membership for the first time in 6 years. What a rush! For those following the feeding program, I will be positing over the weekend as well so you can keep up with the totals. Have a great weekend everyone.
Mar
20
2008
Today my husband told me it was the first day of Spring. How wonderful, except it was snowing as he told me. Then to make it even better, our furnace wasn’t working and it will be in the 20’s tomorrow. Also up here in Maine it is time for the Maple Boil’s. We are going to take the boys to that this year. It should be very intersting. I had never had real Maple syrup until moving here and it is so worth the cost. A little bit will do so much.
Today was also the day to see teachers about the kids and get the new report cards. My son is very smart, but he is over active. The question is ”is he hyperactive” or is he just a boy. Personally, I think he is just bord and probably has some form or dyslexia. The teacher is not quite sure, but she will check with his speech teacher to see what is going on with him. Yesterday, before I forget, my eldest son called me and he told he had gotten a tatoo. Oh how lovely, except that it is a set of praying hands with a memorial to his two sisters Aimee and Carrie. It has been awhile since we lost them, but we all still miss them so much. Next week we have IEP’s for the boys, Paul and Alex and we shall see how they tested. Hopefully, we will find that they are doing better and know more than was expected.
As far as work goes this week, I have ordered T-shirts to wear so people will know what I do and I have also put the magnetic signs on my cars. Now I just need to start going out more often with my button about how I have lost weight. So hope you week has been going well and that Spring is in your area.
Mar
20
2008
Today my husband told me it was the first day of Spring. How wonderful, except it was snowing as he told me. Then to make it even better, our furnace wasn’t working and it will be in the 20’s tomorrow. Also up here in Maine it is time for the Maple Boil’s. We are going to take the boys to that this year. It should be very intersting. I had never had real Maple syrup until moving here and it is so worth the cost. A little bit will do so much.
Today was also the day to see teachers about the kids and get the new report cards. My son is very smart, but he is over active. The question is ”is he hyperactive” or is he just a boy. Personally, I think he is just bord and probably has some form or dyslexia. The teacher is not quite sure, but she will check with his speech teacher to see what is going on with him. Yesterday, before I forget, my eldest son called me and he told he had gotten a tatoo. Oh how lovely, except that it is a set of praying hands with a memorial to his two sisters Aimee and Carrie. It has been awhile since we lost them, but we all still miss them so much. Next week we have IEP’s for the boys, Paul and Alex and we shall see how they tested. Hopefully, we will find that they are doing better and know more than was expected.
As far as work goes this week, I have ordered T-shirts to wear so people will know what I do and I have also put the magnetic signs on my cars. Now I just need to start going out more often with my button about how I have lost weight. So hope you week has been going well and that Spring is in your area.
Mar
18
2008
Not too long ago I was talking to a friend who said I needed to find a nitch. For me the nitch is probably learning to balance working at home with having 2 special needs children. Over the years, I have been blessed with 9 children. Since 2000, I have lost 2 of those children leaving me with 7. Still a large family, but not without some heartache over the loss of our girls. However, I also gave birth along the way to triplets, which many of you know about. However, what I don’t share with many people is the fact that 2 of my triplets are identical with Down’s Syndrome. That in itself makes our family wierd, but our two are very special. In 3 1/2 years, we had close to 50 hospital admits and numerous surgeries. So how does that effect now? Well to be honest, I’m not very trusting with others in terms of watching my kids. And since, Thierry works nights, I can’t just leave them with anyone. So I have to work via the internet. I rarely if ever go out of the house except for grocery runs or to pick up the kids at school. I also don’t give parties, even though the company I belong to is set up as a party company. So my big question is if you have Special kids, how do you balance it all? Do you trust others with your children? Drop me a note and let me know. Also if you have special kids yourself or know someone who does, let me know I’d like to have them on the show to talk about it.
Have a great day!
Feb
14
2008
Wow, what a day! Today, my boys are 8 years old. On this day in 2000, I was in Dallas, Texas in Big Baylor and having triplets… They were the only triplets in the hospital at the time. The boys weighted 2lbs 13 oz, 3 lbs 1oz and 3lbs 12 oz. They spent a whole 28 days in the NICU. We were so lucky in so many ways. However, they boys also had their own surprizes. Triplets B & C were identical which I knew, but they were also born with Down’s Syndrome. Imagine, the specialness of these two. Not only to be identical and boys, but to have Down’s. They were so small, and I didn’t even get to hold baby C for a number of days. He was the size of a Barbie doll.
Through the years, the boys have done many crazy things and we have a number of wonderful Doctors and Specialists to thank for them even being alive. First to Dr. Whitfield at Baylor, thank you for being the best in your field of NeoNatology. Next thank you to Dr. Demeris Wright for being the best Cardiologist the boys or I could have wished for. Next on the list is Dr. Gazetta, who at the time was chief of staff at Dallas Children’s for the surgeries you did on all three of my boys. To Dr. Andy Gelfand, ok God, you pulled it off!! The boys not only survived crappy lungs, but being trached and vented and we learned to trust each other, Thank you. To Dr. Mike Biavati, thanks for being the best ENT in the State of Texas and for sending us to even better ENT’s in Cincinati if thats possible for Alex’s surgeries. To Dr. Nikido for your work on Paul’s Total AV Canal with Valves and coming in after surgery talking about the piece you through away. To Dr. Zeller’s thank you for not giving up on Alex’s ASD and finding a way to make the implant possible. To all the other specialist in ICU, the ER and all the departments that have helped us and cared through the years, THANK YOU!!!
The meaning of Valentines is to show how you care about those who are special in their life. To the Doctor’s you helped me keep my special little men thank you.
To my Family and Children, Thank you for caring and understanding that most of the last 7 years has been spent in keeping them alive. My love and gratitude to Stephanie for being so wonderful and helpful, to Emily for caring and growing up way to soon to make your brothers special in all ways and to Barry, thank you for giving up your dreams of the perfect little brothers and loving them just the same and showing them how to be tough… I love you all
Feb
14
2008
Wow, what a day! Today, my boys are 8 years old. On this day in 2000, I was in Dallas, Texas in Big Baylor and having triplets… They were the only triplets in the hospital at the time. The boys weighted 2lbs 13 oz, 3 lbs 1oz and 3lbs 12 oz. They spent a whole 28 days in the NICU. We were so lucky in so many ways. However, they boys also had their own surprizes. Triplets B & C were identical which I knew, but they were also born with Down’s Syndrome. Imagine, the specialness of these two. Not only to be identical and boys, but to have Down’s. They were so small, and I didn’t even get to hold baby C for a number of days. He was the size of a Barbie doll.
Through the years, the boys have done many crazy things and we have a number of wonderful Doctors and Specialists to thank for them even being alive. First to Dr. Whitfield at Baylor, thank you for being the best in your field of NeoNatology. Next thank you to Dr. Demeris Wright for being the best Cardiologist the boys or I could have wished for. Next on the list is Dr. Gazetta, who at the time was chief of staff at Dallas Children’s for the surgeries you did on all three of my boys. To Dr. Andy Gelfand, ok God, you pulled it off!! The boys not only survived crappy lungs, but being trached and vented and we learned to trust each other, Thank you. To Dr. Mike Biavati, thanks for being the best ENT in the State of Texas and for sending us to even better ENT’s in Cincinati if thats possible for Alex’s surgeries. To Dr. Nikido for your work on Paul’s Total AV Canal with Valves and coming in after surgery talking about the piece you through away. To Dr. Zeller’s thank you for not giving up on Alex’s ASD and finding a way to make the implant possible. To all the other specialist in ICU, the ER and all the departments that have helped us and cared through the years, THANK YOU!!!
The meaning of Valentines is to show how you care about those who are special in their life. To the Doctor’s you helped me keep my special little men thank you.
To my Family and Children, Thank you for caring and understanding that most of the last 7 years has been spent in keeping them alive. My love and gratitude to Stephanie for being so wonderful and helpful, to Emily for caring and growing up way to soon to make your brothers special in all ways and to Barry, thank you for giving up your dreams of the perfect little brothers and loving them just the same and showing them how to be tough… I love you all
Feb
09
2008
God my butt hurts… I had no idea laying down could hurt so much. Now I’m attempting to catchup on all my email. I have done little to nothing to promote my business and yet really don’t feel to bad about it. Shame on me….
I did manage to stay up for a number of hours and started on the email then went to get the kids at school. The snow was falling and they were some huge flakes. Next came the cleaning up around the house and then the nap. I took half of the dose that I can have for pain and the last thing I remeber is Michael asking to use my computer. The next thing it was 4 hours later. Thank God and the company that Thierry has been able to work from home this week.
The cutest thing that has happened today was Alex. He came and pulled up my shirt and looked at the 7 bandages on my tummy and gently touched them and kissed the booboos. Then a few minutes later he through himself at me. So much for gentle, but he tried. Have a great weekend folks and keep healthy. The weather has been crazy all over the country….